The concept of “Big Data” has currently no consensual definition but refers to the vast amount of data created by exponential computing activities and challenges opened by data storage and uses. The impacts of this fast-growing technology are currently not well perceived but Big data opens new perspectives both on technical (communication, storage, analysis) and societal (uses and users’ acceptance) points of view.

This project aims to discuss the rise of Big data technologies and their uses from French and Nordic viewpoints, putting into perspective the specificity of Nordic countries characterized by the highest Human Development indexes.

This project is based on a series of events shared out in Nordic countries as followed:

-          Denmark: Big Data and Food

-          Finland: Big Data and Smart Cities

-          Norway: Big Data and Energy

-          Sweden: Big Data and Health

 REGISTRATION ARE FREE BUT SEATS ARE LIMITED PLEASE REGISTER AS SOON AS POSSIBLE

contact Sweden :

Sandrine Testaz  and Clément Brousse
science@institutfrancais-suede.com

All the workshops are full but you can still register for the morning session.

Monday 25th of Septembre, 2017

Morning at Europahuset (Regeringsgatan 65, 111 56 Stockholm)

Chairman: Jan-Eric Litton, Karolinska Institute and Senior Advisor at BBMRI-ERIC

08:30 - 08:40 –    Welcome speeches

-          Katarina Areskoug Mascarenhas, Head of EU Representation in Sweden

-          H.E. David Cvach, Ambassador of France in Sweden

08:40 - 09:45 –    The new EU data protection regulation: what does it mean for medical research and health care in the future?

-          Jan-Eric Litton, Karolinska Institute and Senior Advisor at BBMRI-ERIC

-          Nathalie Devillier, Grenoble School of Management

-          Lena Jönsson, Inera and Landstinget Dalarna

09:45 - 10:00 Coffee break

10:00 - 11:00 –    Panel discussion: Medical research and care carried out within the EU regulatory framework

-          Charles Huot, Cap Digital cluster (France)

-          Xosé Fernandez, Curie Institute (France)

-          Niclas Jareborg, National Bioinformatics Infrastructure Sweden

-          Ann-Charlotte Sonnhammer, Swedish National Infrastructure for Computing

11:00 - 11:30 –   Overview of H2020 calls, Britta Fängström and Johan Lindberg,  National Contact Points, Vinnova

Lunch and afternoon at KTH (Dome of Visions and OpenLab, Valhallavägen 79, 114 27 Stockholm) ALREADY FULL

11.30 - 13.00       Transfer to KTH and lunch in the Dome of Visions (for workshop participants) http://domeofvisions.se/en/about-dome-of-visions/architecture-and-construction/

13.00-16.00        4 parallels workshop sessions at OpenLab (for researchers eligible to apply for H2020-funding, i.e. Principal Investigators or similar):

1 - Data collection, analysis and fusion for predictive, preventive and  personalized medicine

2 - Technologies for privacy preserving analytics and sharing (encryption, secure multi-party computation, …) of sensitive data from multiple sources (electronic health records, biobanks, PACS, devices)

3 - Enable usage of advanced data analytics in clinical practice

4 - Technologies for allowing patients to appropriate their own data  and health

Jan-Eric Litton - chairman

Jan-Eric Litton is a professor at the Karolinska Institutet, Stockholm, Sweden and Senior Advisor for BBMRI-ERIC.  He was appointed BBMRI-ERIC's first Director General on 22 January 2014 - 1 August 2017 in Graz, Austria. Prof. Litton was Executive Director and head of one of the largest medical infrastructure in Sweden – BBMRI.se (The Biobanking and Molecular Resource Infrastructure of Sweden). He also coordinated the Nordic BBMRI (Denmark, Sweden, Norway, Finland, Island, Faroe Island and Estonia). Litton is renowned for his expertise in biobanking and leadership in large-scale projects. He is also heading the development of e-epidemiology by using Internet, cell-phones, digital paper and digital TV for collecting epidemiology data. Litton is involved in many large EU project in medicine, including the: BiobankCloud – Scalable, Secure Storage of Biobank Data. He was one of the driving forces in the FP5 project GenomEUtwin, where an infrastructure was built to link information between the 600 000 twins in seven European Countries and Australia between 2002–2007. He was the co-director for the Swedish LifeGene initiative, a prospective cohort based biobank with the aim of 500,000 participants until 2010. Since 2012, Prof. Litton is part of the e-science initiative in Sweden with a yearly budget from the Swedish government. Jan-Eric Litton has also made major contributions to the current knowledge in Positron Emission Tomography (PET) and was one of the first researchers showing receptor binding with PET technique. He did his post doc at The Research Medicine Department of Lawrence Berkeley Laboratory and Donner Laboratory of the University of California, USA, 1986–1987.

Nathalie Devillier

Nathalie Devillier is columnist for The Conversation. Doctor of Laws, she likes speaking into a microphone on France Culture with Christine Ockrent and in the radio programme Du grain à moudre or on LCI a TV channel to alert the public on privacy and data protection concerns regarding mobile apps, augmented reality games and connected health.  

She contributes to Unesco and International Telecommunication Union works for Grenoble Ecole de Management where she gives classes (+ESSEC) on digital world and the manager, big data and health, GAFA and US law, etc… using [graphic facilitation] + [flipped classroom].

She published the book « Telemedicine and e-Health law » ( Droit de la santé et de la télémédecine, Ed. Heures de France).

Lena Jönsson

Lena Jönsson, Legal advisor at County council of Dalarna. I mainly practice medical law, specializing in eHealth. I participate in national projects in the e-Health area at Inera AB, a Swedish company owned by Swedish county councils and regions, providing e-Health solutions.

During 2008 -2011 I acted as legal advisor, representing SALAR, in the Legal and Regulatory issues work package in the epSOS project, aimed to design, build and evaluate a service infrastructure that demonstrates cross-border interoperability between electronic health record systems in Europe. During that period I also produced a paper published in World Association for medical law (april-june 2011,” On the Road Toward Ratifying the Convention – The Spotlight is on Biobanks and Stremlined Consent”. On behalf of the Universities-colleges of Dalarna, Skövde and Örebro I have provides series of lectures in the legal area, for example lectures for young scientist in in how to access public information.